The Inspiration Behind ELW

The Inspiration behind ELW is Emerson, a sweet, sassy, 4.5-year-old with the most contagious smile.  Emerson was born extremely premature, and as a result of her prematurity, has Spastic Quadripiligia Cerebral Palsy and relies on a variety of adaptive equipment to participate and thrive in her world.

Early in Emerson's journey, Emmy’s parents were thrust into a world they knew very little about. One of the first things they learned was how significant the gap is between what children truly need and what insurance is willing to cover.

Essential items that they considered crucial to Emmy's quality of life were often not deemed "medically necessary." They found ourselves paying out of pocket for equipment, most of which carried an astronomical price simply because they are "adaptive."

A young girl with a big smile sitting in a wheelchair in a colorful playroom, surrounded by books and toys.
A young girl laughing and sitting in a pink wheelchair outdoors, under a blue banner that reads 'Emmy lights the way' with a moon and stars illustration. The background features a bamboo fence and tropical plants.
A young girl in a pink fuzzy jacket and colorful leggings standing in a walker outdoors, laughing joyfully with bubbles floating around her.
A young girl with curly hair is sitting in a black stroller on a wooden deck, laughing happily with her eyes closed and hands resting on her shoulders.
A young girl with curly hair in pigtails, wearing a gray bib and a patterned dress, sitting in a pink stroller and laughing cheerfully.
A young child with curly hair and a big smile, wearing a red shirt, is being held and cuddled by an adult outside near a swing set.
A young girl bundled in a pink winter coat, blue snow pants, and a red hat sitting in a sled on snow. She is smiling, wearing gloves, and appears to be happy.
Child smiling and enjoying a boat ride while wearing a bright yellow life jacket, sitting on the back of a boat with water and sky in the background.

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